Child dies in France from rare disease linked to virus
A nine-year-old boy has died in France from a Kawasaki-like disease believed to be linked to coronavirus, his doctor said Friday, the first such death in the country as similar child fatalities are being investigated in New York and London. ...
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‘Keeping Up With The Kattarshians’: Iceland’s Reality Cat Show Becomes Local Hit
Move over Kardashians, there’s a new reality show in town and this time it centers around a group of adorable furry felines. That’s right, Keeping Up With The Kattarshians is an actual thing, much …
What Can Duplication Media Do For You?
Video to DVD Transfers, Slide Transfers, Photo Scanning, Film Transfers, CD Duplications, DVD Duplications, Flash Drive Duplications, and more.
How the Medical Industry Benefits from Video Production
In the competitive healthcare industry, the use of videos offer exciting benefits that allow patients easy access to essential medical information. As new treatments and technologies develop on a continuing basis, patients are provided with the best and latest information and care. Today, he
Tips when being Interviewed
There are instances when you will get interviewed by the news media or for a video production on certain issues wherein they need your point of view. Interviews are greatly common today since it is one way of accumulating information from significant individuals. If you are someone who will
Caught on tape: Teacher pushes 9-year-old to ground
Shelby Police interviewed the boy as well as witnesses and sent the case to Law Director Gordon Eyster. He ruled there was no crime committed by the teacher.
What is Rare Disease Day?
Stephanie Feinberg, the family program assistant for The Children’s Inn at NIH talked to MCM’s Deirdre Byrne about Rare Disease Day. The holiday, which — if ...
What is the Definition of a Rare Disease?
What is the universal definition of a rare disease?
Advice from the Rare Disease Community
Today is World Rare Disease Day. Launched in 2008 by Eurordis, a patient-driven alliance representing 738 rare disease patient organizations across the globe, World Rare …
Rare Disease Clinical Trial Recruitment
For some parents, as soon as their child is diagnosed with a rare, progressive disease, the first thing they do is research whether there is a cure, a treatment, or an open clinical trial or one in…
10 Years of Rare Disease Day
At the forefront of medicine, Gene Therapy brings you the latest research into genetic and cell-based technologies to treat disease. It also publishes Progress & Prospects reviews and News and Commentary articles, which highlight the cutting edge of the field.
How many rare diseases are genetic?
Is it true that 80% of rare diseases are genetic? We tried to track down the origin of this oft-used statement. It was a surprising journey.
What does it mean to have a child with a RARE disease?
February 28th is Rare Disease Day. A day to raise awareness and advocate for the 30 million Americans who suffer with rare diseases and disorders. More than half of those 30 million Americans are...
What is ALS? Learn the science and symptoms of this rare disease.
Learn the science and symptoms of ALS, Amyotrophic Lateral Sclerosis.
Why Rare Diseases are Big Pharma’s Latest Obsession
The global pharmaceutical industry has long leaned on blockbuster drugs for common ailments like high cholesterol, arthritis and erectile dysfunction for the bulk of its profits. But the looming ex…
How rare disease research is changing cancer treatment
Rare diseases may only affect a handful of people but their treatment benefits everyone.
How The Internet Helps Rare Disease Patients
Doctors inform where rare disease patients can look online to find reliable, accurate information.
5 trends shaping rare disease drug development
Sales of orphan drugs have grown rapidly, prompting drugmakers to invest in rare diseases. But with that growth has come new scrutiny.
Government to subsidize treatment of 100 rare diseases
People with 100 diseases newly designated as “rare” will face a lower financial burden as of next year, as the government has decided to offer financial assistance to support expenses associated with treatment.The Ministry of Health and Welfare said Tuesday that patients battling any of the illnesses on the list will pay only 10 percent of their total medical expenses, beginning in January 2019. (Yonhap)A rare dise...
How many people are affected by a rare disease in Italy?
It is estimated that, in Italy, the total number of people affected by a rare disease ranges between 450,000 and 670,000. With a prevalence from 0.75% to 1.1% on the total population. While the patients associations involved are 1,079, as emerged ...